Comments for Living With Raynaud's Syndrome http://raynaudssyndrome.im-well.com Tue, 08 Jun 2010 18:35:44 +0000 hourly 1 Comment on Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide by Gerald Or Carolyn Glein http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/comment-page-1/#comment-54 Gerald Or Carolyn Glein Tue, 08 Jun 2010 18:35:44 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/#comment-54 <i>Review by Gerald Or Carolyn Glein for <a href="http://www.amazon.com/Fibromyalgia-Syndrome-Fighting-Devil-Patience/dp/1401023800%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D1401023800" rel="nofollow">Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim's Point of View & Survivor's Guide</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/4.png" ></b> Being a facilitator of a support group for 13 years and publishing a monthly fibromyalgia and lupus newsletter for the last 10 years, I feel I can give an accurate and educated review of this book. And I plan to review it in an upcoming newsletter.<br> <br>There were parts of the book that I found would be extremely helpful especially to newly diagnosed people, I enjoyed the easy readability of it, some medical books are hard to keep going through even for me when I understand so much about fibro. There is a good section on prescription drugs and side effects along with OTC supplements. One of the best chapters had to do with various laboratory tests that are used to diagnose other chronic illnesses that may mimic fibromyalgia, or vise versa. Very thorough.Marilyn is a bit tough on doctor's LOL, & I can understand that from someone who had problems getting the right one and I know there are many medical professionals that do not recognize fibromyalgia even today when they have proof that something in our brains do not function normally when it comes to pain receptors. She did a great job and I admire her for tackling the job of being an author on a topic that has touched her life and turned it around completely. Give this book a try, it's worth a try. Review by Gerald Or Carolyn Glein for Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide
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Being a facilitator of a support group for 13 years and publishing a monthly fibromyalgia and lupus newsletter for the last 10 years, I feel I can give an accurate and educated review of this book. And I plan to review it in an upcoming newsletter.

There were parts of the book that I found would be extremely helpful especially to newly diagnosed people, I enjoyed the easy readability of it, some medical books are hard to keep going through even for me when I understand so much about fibro. There is a good section on prescription drugs and side effects along with OTC supplements. One of the best chapters had to do with various laboratory tests that are used to diagnose other chronic illnesses that may mimic fibromyalgia, or vise versa. Very thorough.Marilyn is a bit tough on doctor’s LOL, & I can understand that from someone who had problems getting the right one and I know there are many medical professionals that do not recognize fibromyalgia even today when they have proof that something in our brains do not function normally when it comes to pain receptors. She did a great job and I admire her for tackling the job of being an author on a topic that has touched her life and turned it around completely. Give this book a try, it’s worth a try.

]]> Comment on Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide by Cheryl Cody http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/comment-page-1/#comment-53 Cheryl Cody Tue, 08 Jun 2010 17:52:40 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/#comment-53 <i>Review by Cheryl Cody for <a href="http://www.amazon.com/Fibromyalgia-Syndrome-Fighting-Devil-Patience/dp/1401023800%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D1401023800" rel="nofollow">Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim's Point of View & Survivor's Guide</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> Fibromyalgia Syndrome-Fighting the Devil with the Patience of Job is one of the best books that I have ever read or purchased regarding living with chronic pain and fibromyalgia. I have the paperback version of the book and recommend it highlyThis author did her homework and has set everything out in laymen's terms so it is easy to understand and refer to time and time again. Also, she certainly does not mind "walking on a few toes" when talking about health care and disability issues. It is a "must read" for people who live in chronic pain and for those who have fibromyalgia (and especially those newly diagnosed with the disorder or think they have it). Review by Cheryl Cody for Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide
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Fibromyalgia Syndrome-Fighting the Devil with the Patience of Job is one of the best books that I have ever read or purchased regarding living with chronic pain and fibromyalgia. I have the paperback version of the book and recommend it highlyThis author did her homework and has set everything out in laymen’s terms so it is easy to understand and refer to time and time again. Also, she certainly does not mind “walking on a few toes” when talking about health care and disability issues. It is a “must read” for people who live in chronic pain and for those who have fibromyalgia (and especially those newly diagnosed with the disorder or think they have it).

]]> Comment on Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide by Ellen Mayer http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/comment-page-1/#comment-52 Ellen Mayer Tue, 08 Jun 2010 17:12:02 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/#comment-52 <i>Review by Ellen Mayer for <a href="http://www.amazon.com/Fibromyalgia-Syndrome-Fighting-Devil-Patience/dp/1401023800%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D1401023800" rel="nofollow">Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim's Point of View & Survivor's Guide</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> I highly recommend this book, particularly for someone who is just beginning to experience fibromyalgia. This book has very good resources and is very concise. Even though I have been diagnosed with this for many years, I gained new information from it. I wish that this book had been published when I was first diagnosed. I have read almost every book out and I truly believe that this has the best information in a fairly short, very easy to read book. I have even had my local library buy a copy and I have loaned the book to friends who have then decided to buy it! Review by Ellen Mayer for Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide
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I highly recommend this book, particularly for someone who is just beginning to experience fibromyalgia. This book has very good resources and is very concise. Even though I have been diagnosed with this for many years, I gained new information from it. I wish that this book had been published when I was first diagnosed. I have read almost every book out and I truly believe that this has the best information in a fairly short, very easy to read book. I have even had my local library buy a copy and I have loaned the book to friends who have then decided to buy it!

]]> Comment on Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide by Sandy Coffee http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/comment-page-1/#comment-51 Sandy Coffee Tue, 08 Jun 2010 16:27:20 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/#comment-51 <i>Review by Sandy Coffee for <a href="http://www.amazon.com/Fibromyalgia-Syndrome-Fighting-Devil-Patience/dp/1401023800%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D1401023800" rel="nofollow">Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim's Point of View & Survivor's Guide</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> Excellent reading!! This book certainly helped me identify with and understand what people with this disorder have to go through. Several people I know have fibromyalgia and I simply had "no clue" as to what they were experiencing until I read this book. Review by Sandy Coffee for Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide
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Excellent reading!! This book certainly helped me identify with and understand what people with this disorder have to go through. Several people I know have fibromyalgia and I simply had “no clue” as to what they were experiencing until I read this book.

]]> Comment on Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide by Johnny Clark http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/comment-page-1/#comment-50 Johnny Clark Tue, 08 Jun 2010 16:09:44 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/fibromyalgia-syndrome-fighting-the-devil-with-the-patience-of-job-a-victims-point-of-view-survivors-guide/#comment-50 <i>Review by Johnny Clark for <a href="http://www.amazon.com/Fibromyalgia-Syndrome-Fighting-Devil-Patience/dp/1401023800%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D1401023800" rel="nofollow">Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim's Point of View & Survivor's Guide</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> A Victim's Point of View and Survivor's Guide IS exactly what this book is all about. It gives an accounting of the author's personal history and makes a wonderful desk reference book. The information I got from reading the book helped me to understand and be more compassionate towards the people I know that have it.This book is great for parents of children with fibromyalgia or other people that they know that have it because it is so complete. It takes you through the entire process of the disease and gives many "tried and true" methods that either help or have not helped (from the author's point of view). Actually, I could not put the book down once I started to read it.I can see how many people waste a lot of money on purchasing items that they do not need, or perhaps do not work and fall into financial difficulty. The author puts a great deal of emphasis on this as well. This book is a great tool for people who think they have fibromyalgia, or have been diagnosed with it, and/or for those that know people that have it. I heard that The National CFIDS Foundation is doing a very favorable write-up of this book in one of their upcoming 2003 newsletter. I rate this book a 5 star! I also noticed that there were more reviews of this book under the hardbound copy. Look there and see those reviews. Review by Johnny Clark for Fibromyalgia Syndrome- Fighting the Devil With the Patience of Job: A Victim’s Point of View & Survivor’s Guide
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A Victim’s Point of View and Survivor’s Guide IS exactly what this book is all about. It gives an accounting of the author’s personal history and makes a wonderful desk reference book. The information I got from reading the book helped me to understand and be more compassionate towards the people I know that have it.This book is great for parents of children with fibromyalgia or other people that they know that have it because it is so complete. It takes you through the entire process of the disease and gives many “tried and true” methods that either help or have not helped (from the author’s point of view). Actually, I could not put the book down once I started to read it.I can see how many people waste a lot of money on purchasing items that they do not need, or perhaps do not work and fall into financial difficulty. The author puts a great deal of emphasis on this as well. This book is a great tool for people who think they have fibromyalgia, or have been diagnosed with it, and/or for those that know people that have it. I heard that The National CFIDS Foundation is doing a very favorable write-up of this book in one of their upcoming 2003 newsletter. I rate this book a 5 star! I also noticed that there were more reviews of this book under the hardbound copy. Look there and see those reviews.

]]> Comment on Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition by Mary Harper http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/taking-charge-of-fibromyalgia-a-self-management-program-for-your-fibromyalgia-syndrome-fourth-edition/comment-page-1/#comment-49 Mary Harper Mon, 07 Jun 2010 01:06:49 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/taking-charge-of-fibromyalgia-a-self-management-program-for-your-fibromyalgia-syndrome-fourth-edition/#comment-49 <i>Review by Mary Harper for <a href="http://www.amazon.com/Taking-Charge-Fibromyalgia-Self-Management-Syndrome/dp/096657740X%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D096657740X" rel="nofollow">Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> The authors have compiled a lot of information about Fibromyalgia in an easy to read format. The chapter on research is up-to-date. They have taken complex studies and made them easier to understand. The practical hints on exercise, coping, and how to deal with flare-ups were really useful. I'm really glad that I found this book! Review by Mary Harper for Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition
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The authors have compiled a lot of information about Fibromyalgia in an easy to read format. The chapter on research is up-to-date. They have taken complex studies and made them easier to understand. The practical hints on exercise, coping, and how to deal with flare-ups were really useful. I’m really glad that I found this book!

]]> Comment on Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition by Karen Grant-Tolman http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/taking-charge-of-fibromyalgia-a-self-management-program-for-your-fibromyalgia-syndrome-fourth-edition/comment-page-1/#comment-48 Karen Grant-Tolman Mon, 07 Jun 2010 01:00:10 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/taking-charge-of-fibromyalgia-a-self-management-program-for-your-fibromyalgia-syndrome-fourth-edition/#comment-48 <i>Review by Karen Grant-Tolman for <a href="http://www.amazon.com/Taking-Charge-Fibromyalgia-Self-Management-Syndrome/dp/096657740X%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D096657740X" rel="nofollow">Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> This book is outstanding, extremely well written, and very down to earth and reaches everyone no matter where in their journey they are. I run a support group for fibromyalgia and have been diagnosed for over 10 years. This is one of the best books I have read on this topic and have recommended it to all that I come into contact with in the FMS world! <br /> <br />Huge thanks for the writer as she did an outstanding job and encompassing everything we deal with daily! <br /> Review by Karen Grant-Tolman for Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition
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This book is outstanding, extremely well written, and very down to earth and reaches everyone no matter where in their journey they are. I run a support group for fibromyalgia and have been diagnosed for over 10 years. This is one of the best books I have read on this topic and have recommended it to all that I come into contact with in the FMS world!

Huge thanks for the writer as she did an outstanding job and encompassing everything we deal with daily!

]]> Comment on Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition by HSP http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/taking-charge-of-fibromyalgia-a-self-management-program-for-your-fibromyalgia-syndrome-fourth-edition/comment-page-1/#comment-47 HSP Mon, 07 Jun 2010 00:43:00 +0000 http://raynaudssyndrome.im-well.com/fibromyalgia-syndrome/taking-charge-of-fibromyalgia-a-self-management-program-for-your-fibromyalgia-syndrome-fourth-edition/#comment-47 <i>Review by HSP for <a href="http://www.amazon.com/Taking-Charge-Fibromyalgia-Self-Management-Syndrome/dp/096657740X%3FSubscriptionId%3DAKIAIWCSUFWU4XU57WKQ%26tag%3Draynaud-20%26linkCode%3Dxm2%26camp%3D2025%26creative%3D165953%26creativeASIN%3D096657740X" rel="nofollow">Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition</a></i> <b>Rating: <img src="http://raynaudssyndrome.im-well.com/wp-content/plugins/WPRobot3/images/5.png" ></b> I was recently diagnosed with fibromyalgia. This book answered all of my questions about the disease and provided me with ways to cope with my illness. The book is well written and packed with information. I highly recommend this book to all. Review by HSP for Taking Charge of Fibromyalgia: A Self-Management Program for Your Fibromyalgia Syndrome, Fourth Edition
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I was recently diagnosed with fibromyalgia. This book answered all of my questions about the disease and provided me with ways to cope with my illness. The book is well written and packed with information. I highly recommend this book to all.

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